Hello Family and Friends,
Thank You Bridgett for updating the blog for me last week. Just want you all to know that I have made Starbucks that much richer after last week's hospital visit. Not that anything bad or unusual happens but when you start knowing the nurse's rotation schedules and they know that you don't want to be disturbed before 7:30am(ha ha good luck)...why does Aidan have to be weighted at 4am anyway?And if I'm not there I am at Starbucks or Toys R' Aidan and that one of Aidan's incredible nearly personal staff likes iced mocha with whip and another likes nonfat vanilla latte extra hot... Sorry I digress-yes, nurse schedules and how their kids and grandkids are doing and why the lady that cleans our room was upset that her 15 year old dropped her second cell phone in the toilet-you know you've been in the hospital toooooo long!!!!!! You get the picture...
Enough about my dying brain cells-AIDAN is doing very well!!! He had a very hard chemo session as Bridgett mentioned. He started Monday and by Tuesday night spiked a fever-this was anticipated due to his HD Ara-C (high dose Ara-C) This lasted 2 days which seems to be the longest he holds a fever and then Thursday started getting a bright red rash on his abdomen. Thank goodness, this one was not itchy but it is still on his head a bit. His personal trauma is still the weekly changing of his bandage that covers his Broviac but seems to be getting through this amazingly well. (It stings when they take off the bandage because the skin underneath is not regenerating so it stays a little raw). After his last dose Saturday morning, Dr. M asked if we would like to go home and awwhhh yeah Dr. Darren we're out of here. Home felt so good-everyone knows now about my three day dehospitalization process. First-sleep in a soft bed, second sleep some more-maybe by day 2 get dressed but day three up and running. Guess what today is!!
I have had a few people ask me what clinic is (hi Jana) -it is Dr. Ruki's Oncology office that is basically equipped for any outpatient services her patients need. They do blood draws so we don't have to go to the germ filled lab, they give blood and platelets so we don't have to check in to the hospital, many kids with A.L.L. (acute lymphomic leukemia) get 2 years of treatment so a lot of their chemo is outpatient. Aidan has a routine-blood pressure, weight, blood draw, Dr.'s physical exam including a thorough external skin exam, wait for blood results and home. We wait for blood results there because there have been a few times as you already know that he's needed blood so I won't drive the hour home for them to call me and say come back for blood or platelets. It makes for a very long morning but Aidan brings a backpack full of entertainment-like a road trip only better!
Anyway, home feels good and he feels good so I am good. The Lord has given us this for a reason and we are going to do our best to make it through without complaints or self pity. I know that when you are in the midst of a crisis it is hard to see the light at the end of the tunnel but I know that Aidan is very well protected right now and that he will see this through and hopefully someday help others get through the same thing. When you sign up for motherhood you never know what you're gonna get-its like the old grab bags the ice cream man used to sell-and I am fully accepting of what's in this grab bag and will carry Aidan through the best I can. Of course I have an incredible man by my side, Tito who would move heaven and earth for Aidan and me, as well as Lucho who not only has to shoulder the illness but has a new baby due in a few weeks. I cannot imagine his emotional tug of war-happy for baby, worried about Aidan-very hard and we pray for him a lot.
Ok enough,
Thank you to everyone who sent cards these last few weeks and a big thank you to come for the special gifts Aidan received over the past few days.
love,
Aimee
PS I'll post some pics this week
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