Aidan's Journey

Aidan's journey began on Monday, Dec 3rd 2007 when we received a phone call that came so unexpectedly. After leaving work, we received a panicked phone call from the Kaiser Peds staff saying that at that moment his blood panels had come back from a check up that morning and Aidan was critically anemic. Do not stop for anything-dinner, clothes, nada. Drive directly to the ER and check right in. The blood tests he had taken earlier that day revealed that every part of his blood test-hemoglobin, white and red cells etc were critically low and further tests needed to be done asap. Hours later he was given two units of blood and platelets. The next morning tests confirmed our worst fears. Aidan's blood was full of cancer as he was diagnosed Tuesday night with Leukemia (Acute Myeloid Leukemia).

Friday, January 25, 2008

As you can see we are trying to keep our sense of humor alive at all times. The nurses at the clinic, our new home away from home, get a big kick out of us and our funny life stories. One of their favorites is how Grandma Robustelli used call Aunt Brenda's dog "Tyota" and then get really mad when he wouldn't come to her but the dog's real name was Dakota and he wouldn't give her the time of day! This silly pic of Aidan was taken last summer but it really depicts how we are all feeling these days. Its kind of like being in Alice in Wonderland or something like that. We are all on some strange trip through another world. Some days Aidan is ok with what is happening cause he's blocking it out really good and other days life just sucks and we just eat doughnuts and watch movies. We've almost seen every movie ever made-or at least that's one of our goals. The other is of course to have California's second Legoland park right here in our townhouse.

This week we went to the clinic twice. Monday was a full day with a platelet transfusion. Aidan is needing more Benadryl lately for the side effects. I'm not sure if that's good or bad, its just what is happening. He tends to have shortness of breath and stomach pain once the Benadryl wears off so he needs quite a bit of it. It is pushed thru his line so it works really fast and in a few minutes he's sound asleep! Thursday was just a blood check and we were out of there in a mere 3 hours and 45 minutes. That's probably a record for us. Sadly, Dr. Ruki's clinic is always full of kids with some sort of leukemia/lymphoma. We have met some pretty amazing families. We all sit and patiently wait our turn. Aidan is completely taken with the little ones who are 2 and 3. He is so entertained just talking to them and seeing that even though they are so much smaller than him they are going thru the exact same thing and I think it makes him braver than he already is-if that is possible. The other day at breakfast he was quite prolific,"Mom-well I really feel like my body is fighting this Leukemia really good and I think its gonna beat it." If he only knew how much money adults would pay in therapy to have that attitude! Go Aidan!!!

Our tentative calendar is Bone Marrow Aspiration on Monday, Jan 26 and possible hospital entry for round 3 chemo the following Monday. Of course this is based on the wonderful count that once again must be at 1000 to begin treatment so we'll see.

Thank you everyone for the continuous gifts and cards. We are so grateful for every thought and extra minute you have taken in your day to think of Aidan.

4 comments:

myrna said...

Hello Aimee and Aidan,

Thank you for keeping us informed on the latest in your life, it is so heartfelt, I'd just like to be there in give you two a big hug.
I'm specially amazed at Aidan's good spirits, way to go sweetheart! You are a champion!!!
As always we keep you in our thoughts and prayers.

All our love,

Myrna and family.

Anonymous said...

Dear Aimee and Aidan - I am trying with a lot of help from Chris and Rosie who are cleaning my house in between giving me computer lessons. Anyway, I just wanted to send my love. I hope you enjoy this sunny Saturday and feel full of good energy.
Love, Grandma Adele

Anonymous said...

Hi Aidan and Aimee!
The sun finally came out here in San Jose and I saw a rainbow! That's a good sign! Thinking of you and what you might do for fun in the hospital. How about getting some puppets (like in What About Bob) and the puppets can do the talking to the nurses and the docs! Hmmm... how about painting your face with war paint to fight the bad cells! As far as movies.. have you seen Peewee's Great Adventure??? I think the boys and I saw it at least seven times!!

I love you! Your silly Aunt Sissie
xoxoxoxoxoxoxox

Papashaheen said...

Dear daughter, Tito and grandson, This week should be an interesting week in Greenville. Uncle Nick is coming to stay with Nana and Papa for a while, waiting for that writer's strike to be over. We are looking forward to having him here. Workers coming to make some repairs, and I am conveniently going on a business trip for 3 days.
Our weather has been very pleasant-in the 40s. Nana is getting back in her "groove". Takes a week or so to get readapted to the "right coast", after being with y'all for 6-weeks on the "left coast".
We sure do miss the hugs and kisses . So, Aimee, you need to give our grandbaby some special lovin' for Nana & Papa today.
Love Dad